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Heart Transplant Discharge Instructions

 

 

 

HEART TRANSPLANT SUPPORT GROUP

Occurs monthly at the Outpatient Pavilion

 

WHEN TO CONTACT YOUR TRANSPLANT COORDINATOR OR TRANSPLANT PHYSICIAN

 If you experience any sign of infection, including:
  • Temperature of 100 degrees or greater
  • Cough or shortness of breath
  • Persistent heart burn or stomach upset
  • Tarry of bloody stools
  • Any wound that is red, warm or draining
  • It is always important to report symptoms of infection promptly.  Remember infections are most common during the first six months after transplant or when undergoing treatment for rejection but may occur at any time.
  • Report cold sores and shingles (painful rash of small water blisters, usually on the chest, back or hips).
  • Inform us whenever you are exposed to any communicable disease that you have not had (chicken pox, measles, etc.).   You must receive the serum to prevent chickenpox within 48 hours of exposure for it to be effective.

 

ACTIVITY

Restrictions for 1st six weeks after surgery:
  • Do not drive a car.  Whenever riding in a car, you must always wear your seat belt and shoulder restraint.
  • Do not lift any objects greater than 10 pounds.
  • Avoid pushing or pulling objects (lawn mowers, vacuum cleaners, furniture, etc.).
  • Please consult your Transplant Coordinator, Transplant Physician, Rehab Nurse or Exercise Physiologist before resuming any of these activities.
  • Sexual activity may be resumed upon your readiness.  Avoid any positions that may cause discomfort to the chest.
  • Please Note:  Most patients start a formal rehab program 2-4 weeks after discharge from the hospital. 

 

DIET

  • Limit salt intake
  • Moderate fat intake
  • No non-pasteurized milk products or raw eggs.    
  • No undercooked meats: poultry, pork, etc…
  • No sushi for 6 months. No raw oysters or raw shellfish of any kind
  • No berries or uncooked green onion for 6 months. 
  • Specific dietary considerations:

 

BIOPSIES AND RETURN VISITS: see schedule provided by Nurse Practitioner

All routine office visits and biopsies include lab work. Bring your medication records / weights / Blood Pressure reading and Temperature log with you to the visit for the Nurse Practitioner to review.

 

DO NOT TAKE YOUR PROGRAF THE MORNING OF YOUR APPOINTMENT. 

The night before your appointment take your regular evening dose exactly 12 hours before your lab appointment. For example: If your lab appointment is scheduled at 9am on Tuesday, then take your Monday evening dose at 9pm. The will insure an accurate cyclosporine blood level. You may bring your morning dose with you to take after your blood has been drawn.

GENERAL CONSIDERATONS

Infection Control – Always use common sense and avoid contact with friends or relative who are ill.  Masks are only required when making hospital visits.  Frequent hand washing is encouraged as a way of preventing colds.
 
Skin Care – If you experience minor cuts or scratches, clean with soap and water.  You may apply Betadine solution if you wish.  For large cuts, dog bites ect., always call your Transplant Coordinator for proper treatment.  Dry skin may be a problem and use of mild soaps and body lotions after bathing can help.  Alpha Keri bath oil and lotion should be used for severely dry, scaly skin.
 
Sun Exposure – Due to immunosuppression, transplant patients have an increased chance of developing skin and lip cancers.  These cancers are ten times more common in transplant patients than the general population.  When outside, even on cloudy days, remember:
  • Always wear broad-brimmed hats and use clothes to cover as much as possible
  • Always wear sunscreen lotion on exposed skin and apply frequently with prolonged exposure or swimming.  Sunscreen must have a SPF of at least 15.
  • Avoid sun exposure between the hours of 10am and 2pm.
 
Sexuality – Sexual activity may be resumed upon your readiness.  Avoid any positions that may cause discomfort to your chest.
  • Women:  If you are of childbearing age some form of birth control must be used.
  • Men:  If you are experiencing any problems with impotence this may be due to your medication, particularly blood pressure medications.  Please discuss this with your physician or Transplant Coordinator, because there may be alternatives available.
 
Flu Shot – All transplant patients should receive a yearly flu vaccine.  Please contact your Transplant Coordinator for more information.  Flu vaccine is usually available starting in October.
No live vaccines.
 
DentalCare - You should continue your regular visits every six months.  Antibiotics not typically required for routine dental work. 
 
Smoking  - YOU MUST NOT SMOKE – Smoking damages the lungs and increases your risk of developing cancer and lung infections.  Smoking can also cause the development of coronary artery disease and high blood pressure.  Avoid second hand smoke as much as possible.
 
Pets - Avoid contact with cats and birds: risk of toxoplasmosis, Do not clean litter boxes / liners. No cleaning of aquariums for fish, or reptiles. 
 
Plants /Flowers - Avoid fresh cut flowers and gardening for the 1st 6-months due to the risk of potential exposure to toxins and molds that may come with these items.
 
Other Medications - Please contact the office before starting any new over the counter medications, new supplements or prescriptions prescribed by another provider so that we can ensure no interactions with your immunosuppressants. 
 
Travel - No Air Travel for 3 months.  No foreign travel for 6 months
Prior to foreign travel, patients must be seen for assessment of necessary vaccines. 
 

ALWAYS REMEMBER:  There are no stupid questions, so please contact your Transplant Coordinator with any concerns or problems.  Their goal is the same as yours: a full recovery from surgery and your continued good health.

 

 

 

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